Do you know what I go through?

I found a list of common migraine symptoms – and when you read this remember that I have most of these 100% of the time – as in they never go away.  Let that sink in for a moment.

migraine-symptoms

and migraine-is-more-than-a-headache-the-many-symptoms-of-migraine/

Lets go over some of them together off that list.  I will add some of my own that are missing and mark the ones that don’t pertain to me.

Visual Aura (before the pain begins)

  • a bright shape that spreads across the visual field of one eye and appears to block some or all of the vision; can be seen whether the eye is open or closed – I have this almost 24 hrs a day
  • flashes of light and color  *  24hrs a day 
  • wavy lines  * 24hrs a day
  • geometric patterns  *Not really
  • blurred vision  * 24hrs a day 
  • partial loss of sight  *Not really
  • *I will also have hallucinations of things that are not there (spiders/bugs/shadows) mostly caused by medications that I take to prevent and treat the migraines/daily headaches I have.

Sensory

  • numbness or tingling on the face or upper extremities * 24hrs a day 
  • a sense that limbs are a distorted shape or size *No
  • heightened sensitivity to lightsound, and smells  * 24hrs a day 
  • smelling odors that aren’t actually present (like natural gas or something burning)  *happens a lot – mostly Gasoline, burnt bread, chocolate(that I am allergic to) dirt or dust, grass, something is wet or damp…
  • skin sensitivity and intolerance of being touched (allodynia)  *happens a lot
  • *things will feel overly cold or hot to the touch…or if it is a little cool to the touch I can’t tell if is it damp or not, and not in like a normal way, like my nerves cannot relay what it is they feel correctly – and the reaction of something being too hot might be delayed. 

Motor

  • partial paralysis  *Not really
  • weakness or heaviness in the limbs on one side of the body  * happens a lot
  • *with chronic fatigue comes chronic pain – so I have pain that radiates all over my body.  a migraine will make that worse.  also if I have had a CFS flare, it makes the daily headache worse or a chance of a migraine higher.

Cognitive

 Digestive
  • food cravings (particularly for carbohydrates, candy and chocolate)  * 24hrs a day 
  • stomach rumblings * 24hrs a day 
  • constipation  *I have IBS

Fluid disturbances

  • increased thirst  *Not really
  • frequent urination*Not really
  • bloating/fluid retention *Not really

Mental/Personality

  • fatigue, lethargy  *I have Chronic Fatigue Syndrome
  • mood changes  * yes
  • irritability  *sometimes
  • high energy  *sometimes
  • depression  *yes – I want to cry all the time
  • anxiety  *And panic attacks – thank you Botox for that.  I have not done the treatment in years yet I still have the panic attacks – plus I worry all the time that my support system will have enough of all of this one day.  Also adds to my depression 
  • nervousness  *yes see above
  • euphoria, feeling of intense well-being  *yes, followed by depression and feeling like it is all going to go wrong.
  • *I feel all alone – most of the time.  

Digestive

  • nausea  * 24hrs a day 
  • vomiting  *sometimes
  • intolerance of food odors  *sometimes
  • loss of appetite  *Sometimes
  • diarrhea  *Not really
  • constipation  *most of the time(IBS)

Skin

  • paleness  *Not really
  • cold, clammy hands and feet  * 24hrs a day 
  • facial swelling*Not really
  • goose bumps*Not really
  • bloodshot eyes  * 24hrs a day 
  • black circles around eyes  * 24hrs a day 
  • sweating  * 24hrs a day worse at night

Respiratory

  • frequent yawning    * 24hrs a day 
  • sighing  * 24hrs a day 
  • hyperventilating  *Sometimes
  • nasal congestion  *sometimes
  • runny nose  *Sometimes

Circulatory

  • changes in blood chemistry *Not sure
  • changes in blood pressure  * 24hrs a day 
  • blood vessel dilation  *not sure
  • difficulty regulating temperature  * 24hrs a day 
  • changes in heart rhythms  * 24hrs a day 
  • *blue fingers/toes

So I have added a bit of what I go through or feel.  I hope that this helps some of you feel not so alone, or gain a better understanding of someone you are close to who might have this horrible health condition.  Remember that a migraine is not a singular thing – it is a condition.  The head pain is only one phase of four – the third phase.   I will get into the different phases on another post.

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